As the disease progressed, Brian’s needs have become greater. Until his tracheostomy in October 2022 his wife Kristy and their five children handled everything. With his tracheostomy, Brian needs round the clock care. To help the family, part time Caregivers were hired.  This is an out-of-pocket expense not covered by insurance.  Caregivers are necessary for Brian’s quality of life and for his family’s as well. 

 

Statistics show that it costs $150,000 (out of pocket) a year to keep an ALS patient healthy and thriving. The Jeansonne Family has estimated their cost to be around $120,000 a year for Brian’s care and out of pocket medical expenses. 

 

Since April 14, 2020, people have been very generous and many have given to the family in multiple ways. Here are a few of the tangle ways donations have been used. 

 

·      Home renovations to make their house handicap accessible

·      Outdoor electric lift installed

·      Power wheelchair

·      Out of pocket medication

·      Handicap accessible van

·      Many assistive devices

·      Family adventures at Brian’s request

 

Donations are processed on the family’s behalf by TWENTY35NPO A section 501(C) (3) organization and all donations made to it are deductible in accordance with IRS regulations. 

 

Donations can be made electronically by clicking on the ‘donate’ button.