As Brian's disease progressed, his needs have increased, especially after his tracheostomy in October 2022. Initially, his wife Kristy and their five children took care of everything, but with the tracheostomy, Brian now requires round-the-clock care. To assist the family, they hired part-time caregivers, but unfortunately, this is not covered by insurance and becomes an out-of-pocket expense. These caregivers are vital for Brian's quality of life and also for the well-being of his family.

 

According to statistics, it costs approximately $150,000 a year (out of pocket) to maintain the health and well-being of an ALS patient. The Jeansonne Family estimates their expenses at around $120,000 per year for Brian's care and additional medical expenses that are not covered.

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Since April 14, 2020, people have been very generous and many have given to the family in multiple ways. Here are a few of the tangible ways donations have been used. 

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• Home renovations to make their house handicap accessible

• Outdoor electric lift installed

• Power wheelchair

• Out of pocket medication

• Handicap accessible van

• Many assistive devices

• Family adventures at Brian’s request

• Caregiver for 40 to 60 hours a week

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There are 2 ways to give. 

1. Donations are processed on the family’s behalf by TWENTY35NPO A section 501(C) (3) organization and all donations made to it are deductible in accordance with IRS regulations. 

2. Via Venmo @thejeansonne7

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